Friday, July 25, 2008

Autism is in the media lately

I guess there was a rant by Michael Savage on a radio show last week or around then claiming autism has to do with poor parenting and over diagnosis. I didn't hear it and despite a google search I can't find the rant in a full clip. The best I can do is some shorter clips on http://www.savageonautism.com/
I guess the whole thing lasted 84 seconds. At first I was ticked off- to say the least. Don't call my kid an idiot or moron, don't accuse me of fraud for having #2 tested and getting services through the school to help him have a more 'normal' life (I'll discuss normal another time), and DO NOT make it seem like I don't bust my fanny trying to raise good kids. Then I realized it took 5 minutes to push poor #2 naked and wet into this cold world. I know it was 5 minutes between the time my water broke and birth because 1. it was the longest, most painful five minutes and 2. because the nurse timed it. So if I could push that hard for 5 minutes I can do anything, even evaluate-rationally- how the rant left me feeling. I listened to the clips on the above website and realize that I had never heard of this guy before, don't really care what his opinion is, and can't see why I should worry about it. Remember the line about opinions and what they are like (you know- bad word for rectum) and that everyone has one. I'm applying that here.

That said there is something else to be added but not because I have an honest to God autistic, not just spoiled and bratty, boy. When a person is in any position that gives more attention than usual to their opinions I think they should give more than usual consideration to how their comments will be taken. Michael Savage is no more commanding of respect than anyone else- big deal he's got a talk show. Does he have an advanced degree, extraordinary experience or God given special ability? Nope- he's just a guy. The pity is that his words will influence some of his listeners and they will believe his view is gospel. Well, nothing I can do to help them. I'm doing the best I can to raise a child with a disease that most people don't understand. I have my hands full with my two kids and trying to teach them as much as I can each day. I'm not going to call for his termination or rail against the injustice of people like him having an audience. I've listened to radio hosts and agreed and disagreed but I don't let them shape my world views. Talk shows and talk radio are for entertainment, if they can bring awareness to something or help people that's great, but don't expect anything more than entertainment. As for his comment about the money we get for autism- where is it? I'm spending lots of money out of pocket to try and help #2. He gets speech, occupational therapy and special ed. services to help him but autism can be very expensive. We have spent thousands of dollars to install a fence so he can't run into the street- and that's only half of our property done so far. I can go on and on about expenses.

Wanna know the most painful parts of #2's autism? He's never said mommy or daddy to us, no I love you or I missed you, not even the toddler/preschooler harsh words of I hate you. He has no language. He is very affectionate so I know he loves me but I'd gnaw off my own arm to hear him say it. How about the uncertain future- I know, everyone worries about their kids, but my worries are quite a bit different for him than for #1. What about if I die- who will take care of him and help him learn, drag him out into the world to try new things, protect him from the world at the same time and generally be there for him?? Have I done all I can to help him? That's the question that gets me in the night. It's hard enough to wonder if I'm doing the right thing or enough to help him communicate with out someone else adding to my stress. If I think I'm low on my daily dose of stress, I can find ways to add to it myself!

I guess what it all boils down to is who is this Michael Savage to me that makes his opinion more important than anyone else's? Nobody, that's who. I don't need him to lose his job or any such thing. I'm sure that since he's explaining himself so much on the above mentioned website that he is aware of the outrage. But the only thing I hope to see come out of this is more awareness that autism is out there. There are tons of sites ripping this guy apart and spreading the word that autism isn't about lack of discipline or spankings. For myself it's just another small bump in a long hard road. Now I've gotta go and be a mom to 2 kids whose opinions mean a lot more to me than some radio guy.

Saturday, July 19, 2008

Harry the Macaw and tales from the darkside

Yesterday my daughter and I had to make a pet shop run. The dog does like to be fed on a regular basis and although he prefers human food, I try and keep a nice dog food diet for the majority of his intake. We headed off to a local Pet Supplies Plus store and met Harry the Macaw. It was stocking time but the people were great. One even opened the cage so we could play with Harry. the Severe Macaw was thrilled- it beat hanging out in his cage watching the shelves get stocked so he came out and ate peanuts while nibbling on our hands. #1 had not been able to play with a large bird before and was thrilled. I could've done without the requests to make Harry her new roommate. Sadly, Harry is not here but he is scheduled to move to another store where he, hopefully, will be purchased soon. Before anyone decides to fill my comments with anything about not buying from pet stores- hold up. We didn't buy him, nor are we going to. It is because 1. we are still remodelling the house and drywall dust isn't good for birds, 2. $1400.00 isn't slated for a bird, 3. I would prefer a Cockatoo or African Grey and 4. the kids are too young, the house too drafty and last but not least Hubby wouldn't be happybut the 3 cats would. Anyways, #1 finally got a pinch on her finger. I think Harry was getting over stimulated by the play and the peanuts. Of course the bird pinched me many times while being gentle to her first but he finally needed to just go back into the cage and calm. Right- Harry wanted to stay out so he went on top of his cage top playground and bobbed his head at me like he was making sure I knew I was too short to get to him. Today we went back to visit and grab a pic of #1 with Harry. I think he remembered us because he was having a grand old time sticking his foot out to 'shake hands' and try to pull me back in through the bars. No bites today- just tons of friendly tasting and rubbing against us. So we have wished the bird bon chance and safe travels. Cute goofball bird.

#1 will be off to Grandma's later for a few days of spoiling and doting. We call it Spa Grandmas ever since she came home and announced "Gramma powders my bum after my bath". Must be nice. I have very fond memories of my own trips to my grandparents as a child but I do not recall bum powdering at any time. I do remember being the center of attention and enjoying every second of it. It was good to be a princess. I think I'm living Cinderellas life in reverse some days- I was a princess and now I'm a scullery maid (not even a good one, though). #2 is staying home to be the prince of the manor so I'll have to put off most of the scullery work until he's in school during the week. #2 likes to involve himself when I'm trying to clean- not help, just involve himself somehow. The only problem is his involvement usually throws a spanner in the works. Either he slows the process to a virtual stand still or he makes more of a mess than I can work around. The easiest way to clean is to wait until he's at school and go nuts. Once while sorting the playroom toybox and packing the old, outgrown toys to go to Goodwill I caught him trying to climb in the big black trash bag- oh the temptation ;). I know- don't joke about sending the kids to Goodwill- someone, somewhere has probably done it or will do it soon. I joked about Ebay and auctioning them off to the lowest bidder and sure enough, some twit did try to auction her life for a weekend, kids included. I'll warn everyone right now- I have a very dry sense of humor. I will say many things that most people wouldn't and joke about the things most parents would prefer to forget. Let's face it- kids are funny, especially when they aren't trying. They are also sometimes smelly, aggravating, strange, embarrassing, and mostly lovable.

Kid stories are a major part of my life. Not just the kind you read to the wee beasts but the kind that become family lore. #1 changed "Bippity Boppity Boo" into "Broccoli Broccoli Boo". Tell me that shouldn't become a family catch phrase. #2 is an escape artist or maybe I should say escape autist- he can get out of any clothes I put him in and at the worst time. Got workers putting in a new window? Captain Naked Bum will supervise. Is the state Dep't of Transportation taking down a tree out front before it drops more limbs into the road? Have no fear the Streaker is here. I swear I love having windows in the house except when I have to wash them or he goes dancing by them as fully attired as a naked mole rat. Add to that the fact that he is porcelain pale and he practically glows in the dark. Thank goodness the afternoon sun bounces off my windows making it impossible to see in. The morning sun doesn't do a thing for me so I tend to be more alert to 'flashdance' boy then.
Til next time.

Saturday, July 12, 2008

A war, a fair and a dance

Today we are off to a Civil war re-enactment with a 19th century sanitary fair and a dance. A more eclectic day in a town park I can barely imagine. I'm picking up a gal pal of #1 for a day of exploring history without the 7 year olds realizing they may learn something. I love to toss in a healthy dose of education to most things so this should be fun. The only real downside is the heat. I'm not a big fan of HOT weather, especially when you add in humidity. I like a crisp morning warming into the low 70s with some sun for a pleasant glow. Not this so hot I'm sweaty walking to the car nonsense. If I wanted scorching hot I'd hang out in my oven.

Tomorrow my great aunt turns 94! She still lives in her own home and drives (a 2001 Mustang convertible!). Count me impressed. Here's to you Aunt M- HAPPY BIRTHDAY! And many more.

Th Th That's all for now, folks- gotta get ready for a step back in time.

Wednesday, July 9, 2008

All by myself

Today I am all by myself. #1 is at Grandma's house for the last day in her three day stay. #2 is at school and Hubby is away traveling in the great wilds of Upper Ontario, Canada for his work. So far I have cleaned up one attic and sorted through some of the seasonal storage in that one. Boy do I have a lot of Halloween stuff for this year. I always pick up some decorations after the holidays to add for the next year and store it away. I also discovered that for some unknown reason I put a bunch of empty boxes in the lower attic. No wonder it looked so full. Some day I hope to have a subfloor in the entire lower attic. Right now only about 40% is floored for storage. I'd also like to insulate the heck out of there but that will have to wait for at least one more year. We are working on drywall for the kids new bedrooms and play area so that takes priority. Home renovations can be such a treat. The mess, the frustration, the emergency trips to the hardware shop for forgotten and critical supplies (drywall screws, anyone?), it makes me wonder if we will ever be done up there. The target is Christmas for drywall and beadboard in the bedrooms with hardwood floors. I wonder which target item will change first. I can't wait to get them in their new rooms. The original rooms were very small and only one of them had a heat register. I have high hopes for the finished products. Hubby is really quite handy around the house and I can wield a mean paint roller.

So what exciting things will I do with myself for the next 3.5 hours of alone time? Laundry, load dishwasher, clean bathrooms, mop kitchen, the list of things to do goes on and on. I think I will mop later, toss in a load of laundry soon, load the dishwasher and get some general picking up done. I am also amazed at the general level of cleaning to be done when you have kids and pets. There must be some really scary mathematical formula for this. It must involve calculus which I never really got the hang of. Something like the square footage of the house times the number of small creatures (kids and pets)raised to the 42nd power divided by number of hours in the day less sleep time of pets ( we all know kids don't sleep so much as recharge their batteries quickly) and somewhere is a coefficient of the times needed for other things (cooking, travel, nervous breakdowns, ER visits, and searching for car keys last seen clutched in small hand headed to the toy box). I haven't even figured on the complex stuff yet. But that is the probable formula for house work. Also something about the size of yard, quantity of rainfall for depth of mud tracked over what distance of the house. Yep, I'm blogging to procrastinate. I've gone to great websites which promise little steps to a cleaner house but no joy. I'm obviously ADD- definitely without the hyperactivity (I wish I was a bit more hyper- maybe I'd get more done in a day) I get side tracked from the little steps and then forget it- I'm done. My problem is I'm a bit of a packrat and I get bored quickly. Once I'm bored my mind wanders and soon my feet follow. In my family we refer to it as "Oh look, a chicken". There is a long story about a person(probably me) who is going on and on about a topic of interest only to get totally sidetracked and lose the entire train of thought upon seeing a chicken out the window. I'm pretty sure it's just an analogy since I grew up in the city. Long story short- new thought, new action while abandoning the old mid stride. Happens to me all the time. Add a fair dose of impatience and it's a nightmare.

So I'm setting the timer for 10 minutes and then going to quit blogging and start working. I think I'll start with laundry and go to the mopping. Then when the mopping is done I can load the dishwasher, move wet laundry to dryer and start a new load. I got a new washer and dryer about a month ago. The old guys just started dying and finally the washer decided not to spin or rinse anymore. I really loved my Asko set but they were very small so we went with an LG set which are almost 2x the size. They work great and I'm very pleased with them. If Asko made larger sizes I never would have left them. I loved that washer and the fact that it only hooked up to the cold water, had an on board heater up to 205 degrees, and was very water conscious (good for our septic!!) while spinning out most of the water so they could dry very quickly. I'm getting used to the fact that the new set is much larger than the old and leaves less room on top for folding and the basket. Eventually the laundry room will get overhauled and who knows what changes will be made but I'll be wanting enough room for the basket to fit under whatever shelves we replace these with.

Oops- timer going off- must work now. Take care.

Saturday, July 5, 2008

joining technorati

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Mommy independence day

How was everyone's fourth? I chatted online with my sister in law in Germany and actually went off to JoAnn Etc. without a child chaperone. It was a lovely day that started with seeing my sister in law was online and chatting with her over Windows Messenger then my mother-in-law brought over spare ribs she had made us (she owned a Polish tavern in Buffalo for years and is a wonderful cook). After that I went off without a child (pinch me- I'm dreaming!) for a craft store run. Granted I needed a few items for my daughter more than things for myself but hey- any chance to peruse a craft place without being hurried or pestered to buy items I don't like is fun. Later in the day we went off to the local playground for some climbing, sliding, running fun. Then to the fireworks and a great time was had by all. After a hard days play we all fell into bed without so much as a whimper of protest. While it's too bad all our days can't be so footloose and fancy free it's nice to have time as a family to relax and all be more like children. No great worries about work, bills, home repair or such wrecked the simple joys of letting the kids run free.

One of the things I did yesterday that I have never done before was to look in the windows of #1s classroom of the last two years. I have never seen it so empty. There was a sense of both sadness that she won't be back in that room next year and also excitement that she will be just down the hall with her new teacher. We had the same teacher for the last two years. Due to a small town population explosion one year there were more kids starting school last year than most so we had a teacher move down to kindergarten to allow small classes. Then she moved back up to first grade. I volunteered there quite a bit for both years and as much as she will miss her teacher, so will I. She is just so nice and sweet and caring about the kids. We all had a great time together and I gained a lot of experience with classroom parties, politics and dramas. To see the classroom with only a few things remaining was quite odd. It looked just like any other big rectangle room except for the number line running above the blackboard I have pointed to so many times when helping a student add or subtract or count by 2s and 5s and 10s. I feel a real affinity for that number line. I'll be stopping back in that room to see the teacher as I go by on my way to second grade next fall.

My five year old will be off to kindergarten in the fall. That is a source of excitement and concern. He has been in a fully integrated preschool setting for the last two years and has a full time aide to help him. He will have an aide in the fall but it's a big change so I worry about how he will handle it. For those who don't know, #2 is autistic. Life as his mom is often much different than life as the mom of #1. I try and respond to each as best suits them but it's not always easy to remember which mom I am when. I've met #2s teachers for the fall and while they all seem like very nice and patient people I worry for him that the change is going to cause more stress and turmoil than he is able to handle. I've had this worry many times before and he usually reacts poorly initially then adapts but it doesn't take away that sad feeling I get. Maybe it is just me or maybe it's all mothers but it seems harder to watch them struggle when they have so many related problems. Autism is such a bizarre disorder. So many kids and so many different problems. Take 5 kids with it and you can get 5 totally different descriptions of the impact autism has on them. I'm lucky, I'm able to be home with the kids and do a lot with both. It's hard, whether you work outside the home or not, autism is very pervasive to all aspects of each family members life. We try to be honest with #1 about her brothers autism and not make it a taboo or frightening thing. She will have things hard enough growing up since kids can be cruel about differences and may tease her but she realizes (so far) that somethings are not going to go away by wishing them gone. She has talked to her class about autism and how her brother is different from them but that it's not all within his control. Most of the kids are pretty accepting at this age but things change as they get older and the fear of being 'uncool' deepens and leads to verbal cruelty.

I'm not going to launch into the causes/cures of autism beacuse I don't know. I don't know if they can be 'cured' but I do know that all I want for either of my kids is for them to grow up happy and able to take care of themselves. Autism wreaks havoc on that. I know there are blogs and websites run by those with autism who deplore the need for them to change and adapt to our society. In a way I agree with them, but society is not the perfect place where all people act in an honorable manner. My hope for #2 is to get him able to communicate and lead a happy life. If he is destined to live at home with me forever then OK but I am terrified of leaving him at the mercy of those who are less than honorable. To be completely honest there are areas of his behavior I envy. The ability to ignore that which he does not like is extraordinary. I wish I could just ignore like that but I have a tendency to let it annoy me and that leads to having to do something about it. Then I'm just aggravated about the whole thing and my time spent on that instead of something i needed to do. He's a happy kid- he loves being outside in the yard or playing at the stream. He has a stillness to him when he is relaxed that can only be described as totally content with his world. I've seen him sit in the yard by the stream, perfectly still, watching the chipmunks less than 10 feet from him. Of course, I've also seen him fly around the yard with the complete out of control, running too fast to stay on his feet, reckless abandon. I wonder what the chipmunks make of this child of such extremes. He's also very affectionate, more than his sister was at that age. Maybe it's the mommy-son thing as opposed to the mommy-daughter (mini me as Hubby says) that is different, but as different as they are they are also quite alike. They both like to sit on a lap- at the same time, they both like the computer- at the same time, I can go on and on but you get the picture.

And now for another day........